让道德发挥作用——与埃里克·梅斯林教授谈ELSI的历史与未来OA
Making ethics work:a conversation with Professor Eric Meslin on the history and future of Ethical,Legal,and Social Implications
访谈围绕"让道德发挥作用"的核心主题,系统梳理了埃里克·梅斯林教授在美国人类基因组计划及 ELSI 项目中的亲身经历与深度思考.作为 20 世纪末美国生物伦理与科学政策领域的重要实践者,梅斯林教授回顾了 ELSI 的历史起点、制度化运作和资助机制,阐释了跨学科合作、政策转化与治理创新的形成过程,并就 ELSI 研究三十年来的演变脉络提出洞见.访谈亦特别讨论了生物伦理治理在基因组学、罕见病研究、人工智能等技术前沿中的扩展趋势,以及国际合作、数据共享与伦理审查的规范挑战.访谈为理解 ELSI 的历史经验与未来方向提供了重要的第一手资料,对中国医疗与科技伦理治理体系的发展具有参考价值.
Centered on the core theme of"making ethics work,"the interview systematically reviewed Professor Eric Meslin's personal experiences and deep reflections on the American Human Genome Project and the Ethical,Legal,and Social Implications(ELSI)program.As a key practitioner in the field of American bioethics and science policy at the end of the 20th century,Professor Meslin recounted the historical origins,institutionalized operation,and funding mechanisms of ELSI,explained the formation process of interdisciplinary collaboration,policy translation,and governance innovation,and offered insights into the evolution framework of ELSI research over the past three decades.The interview also specifically discussed the expanding trend of bioethics governance in emerging technologies such as genomics,rare disease research,and artificial intelligence,as well as the regulatory challenges of international cooperation,data sharing,and ethical review.This interview provided valuable firsthand materials for understanding the historical experience and future directions of ELSI,offering references for the development of governance systems in medical science and technology ethics in China.
李英杰;杨馥阁;牛艺斐
大连理工大学人文学院,辽宁 大连 116024||大连理工大学社会计算与认知智能教育部重点实验室,辽宁 大连 116024剑桥大学科学史与科学哲学系,剑桥 CB2 3RH大连理工大学人文学院,辽宁 大连 116024
医药卫生
埃里克·梅斯林人类基因组计划ELSI生物伦理科学政策
Eric MeslinHuman Genome ProjectEthical,Legal,and Social Implicationsbioethicsscience policy
《中国医学伦理学》 2026 (10)
1279-1288,10
中央高校基本科研业务费"科技史进路的科技伦理研究:以人类基因组计划为例"(DUT24RW106)国家留学基金委资助青年骨干教师出国研修项目(202406060201)
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