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安宁疗护的家庭决策机制OACHSSCD

Family Decision-making Mechanism of Hospice Care:A Study Based on Grounded Theory

中文摘要英文摘要

扩大安宁疗护服务供给是"十五五"时期推进健康中国建设的重点任务之一.运用扎根理论方法,深入探究家庭在安宁疗护决策过程中的影响因素及其作用机制.研究发现,在安宁疗护的家庭决策过程中,决策启动是触发条件,家庭特质是内在基础,环境赋能是外在引力,决策结果则是上述范畴共同作用的最终呈现.研究构建了安宁疗护的家庭决策机制模型,阐释了安宁疗护的家庭决策机制是以"治愈无效"与"求医无门"为逻辑起点,家庭特质与环境赋能是以网状的方式深度嵌入,多重因素之间具有并发、互为因果和动态交互的特点,其共同作用于家庭决策的结果.同时,研究厘清了家庭决策中各因素的权重与边界,揭示了家庭决策呈现出"犹豫—冲突—共识—执行"的动态演变特征,阐明了家庭决策是分布在从"主动选择"到"被动接受"的连续谱上的分化机理.研究可为面临安宁疗护决策的家庭提供实践指引,倡导家庭从"危机应对"转向"事前规划",通过"明晰家庭诉求、厘清家庭资源、寻找适配服务、评估决策选项"四步法作出最佳决策;同时为完善安宁疗护政策保障体系提供理论依据,为优化服务资源配置提供参考.

"Expanding the supply of hospice care services"is one of the key tasks for advancing the Healthy China initiative during the 15th Five-Year Plan period.Using the Grounded Theory approach,this paper explores in depth the influencing factors and their mechanisms in the family decision-making process regarding hospice care.The results reveal that within this family decision-making process,decision initiation serves as the triggering condition,family characteristics constitute the internal foundation,environmental empowerment provides the external context,and the decision outcome is the ultimate manifestation of the combined effects of these categories.This study constructs a model of the family decision-making mechanism in hospice care,to explain that the family decision-making mechanism of hospice care is based on the logic of"ineffective treatment"and"no access to medical care",with family traits and environmental empowerment deeply embedded in a networked manner.Multiple factors are characterized by concurrency,mutual causality,and dynamic interaction,jointly shaping the decision outcome.At the same time,the study clarifies the relative weight and applicable boundaries of each factor in family decision-making,which reveals a dynamic evolutionary process characterized by a sequence of"hesitation-conflict-consensus-execution",and elucidates that family decision-making is the differentiation mechanism distributed along a continuum from"active choice"to"passive acceptance".This research can provide practical guidance for families facing hospice care decisions,advocating a shift from"passively dealing with problems only when they arise"to"proactively planning ahead before issues arise"and suggesting that families make optimal decisions through a four-step approach:clarifying family needs,identifying family resources,finding suitable services,and evaluating decision options.At the same time,it provides a theoretical basis for improving the policy guarantee system for hospice care and a practical reference for optimizing service resources allocation.

杜鹏;李赫

中国人民大学 人口与发展研究中心,北京 100872||中国人民大学 人口与健康学院,北京 100872中国人民大学 人口与健康学院,北京 100872

社会科学

安宁疗护家庭决策决策机制决策过程扎根理论

hospice carefamily decision-makingdecision-making mechanismdecision-making processgrounded theory

《人口与经济》 2026 (5)

16-30,15

中国人民大学科学研究基金重大规划项目"健康老龄化视域下的中国老年照护体系"(17XNLG08).

10.3969/j.issn.1000-4149.2026.00.049

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