肺癌患者口服中药期间自我管理行为及主观体验的质性研究OA
Qualitative Study on Self-Management Behaviors and Subjective Experiences of Lung Cancer Patients During Oral Chinese Herbal Medicine Treatment
目的 探讨肺癌患者口服中药期间的真实体验及其自我管理行为的形成机制,为制定合理干预方案提供依据.方法 2025年5-8月,采用目的抽样法,选取杭州市第一人民医院肿瘤科已完成中药治疗疗程且停药时间不超过6个月的13例肺癌住院患者进行半结构化访谈,运用内容分析法对访谈资料进行整理与分析.结果 共提炼出5个主题、10个亚主题:①中药可及性与信息获取受限(获取途径单一,高度依赖医疗机构;主动获取信息的渠道可靠性存疑);②理解中药信息的能力不足(文化程度偏低限制认知能力;中医药知识专业门槛高,认知呈明显分层);③现代化赋能下的中药自我管理分化(依赖医院代煎服务,流程被简化;自行煎煮者积累起丰富的操作经验);④疗效认可与信任危机并存(基于文化认同与体验的深层信任;对药品质量与诊疗过程的多重顾虑);⑤社会支持弱化与沟通困境(医患沟通中的被动依赖模式;专业与非专业支持双重匮乏).结论 肺癌患者口服中药期间整体体验面临多维度困境,建议从提升药物素养、优化医患沟通、构建多层次社会支持网络三方面入手,改善患者用药体验与自我管理行为.
Objective To explore the real experience of lung cancer patients taking oral Chinese medicines and the formation mechanisms of their self-management behaviors,aiming to provide evidence for developing appropriate interventions.Methods From May to August 2025,13 inpatients with lung cancer who had completed TCM treatment and had discontinued medication for no more than 6 months were selected by purposive sampling from the Oncology Department of Affiliated Hangzhou First People's Hospital for semi-structured interviews.Their interview data were collected and analyzed using the content analysis method.Results A total of 5 themes and 10 sub-themes were extracted:① Restricted access and acquisition of Chinese medicine information(singular reliance on medical institutions;dubious reliability of self-sought channels);② Limited ability to understand Chinese medicine information(low educational level,restricting cognition;high knowledge threshold,creating pronounced cognitive stratification);③ Divergent self-management during TCM treatment enabled by modernization(reliance on hospital-provided decoction services,simplifying the process;self-decoction building rich hands-on experience);④ Coexistence of efficacy recognition and trust crisis(deep trust rooted in cultural identity and personal experience;multiple concerns about drug quality and treatment process);⑤ Weak social support and communication barriers(passive dependency in physician-patient communication;dual deficiency of professional and non-professional support).Conclusion Lung cancer patients face multidimensional challenges in their overall experience of oral TCM treatment.It is recommended to improve their medication experience and self-management behaviors by enhancing medication literacy,optimizing physician-patient communication,and building a multilevel social support network.
方新宇;陈雨静;宁丽
浙江大学医学院护理学院,浙江 杭州 310058杭州市第一人民医院,浙江 杭州 310000杭州市第一人民医院,浙江 杭州 310000
医药卫生
肺癌中药自我管理行为用药体验药物素养质性研究
Lung cancerChinese medicineSelf-management behaviormedication experiencemedication literacyQualitative study
《上海护理》 2026 (9)
26-30,5
浙江省中医药卫生科技计划(2024ZF110).
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