口腔癌患者术后放疗期自我症状管理的用户画像研究OA
Self-symptom management among oral cancer patients during postoperative radiotherapy:an user persona research
目的 探究口腔癌患者在术后放疗期的自我症状管理特征及人群差异,为制定口腔癌患者放疗期自我症状管理干预方案或开发移动医疗程序提供参考.方法 通过目的抽样法抽取15例于门诊行放射治疗的口腔癌患者进行半结构化访谈,获取患者个人属性、自我症状管理、社会支持等信息.使用Colaizzi七步法分析资料;人工抽取患者特征并构建画像,采用Word Art词云图与人物标签的形式可视化患者画像.结果 口腔癌患者术后放疗期自我症状管理特征共提取5个维度:基本特征、心理调试、自我管理认知、自我管理行为与社会支持,构建4类口腔癌患者放疗期自我管理的典型画像,分别命名为乐观自律型、消极放任型、焦虑矛盾型、被动接受型.结论 口腔癌患者在放疗期自我症状管理方面存在较大的人群差异,通过用户画像技术可帮助构建和挖掘不同类型的患者画像及群体特征,为未来在临床实施提供更个性、精准的临床干预措施提供依据.
Objective To explore self-symptom management characteristics and population differences of oral cancer patients during postoperative radiotherapy,and to provide guidance for the development of self-symptom management intervention programs for this group during radiotherapy or the development of mobile medical procedures.Methods Fifteen oral cancer patients undergoing ra-diotherapy in outpatient were selected using purposive sampling;one-to-one semi-structured interviews were conducted to obtain in-formation on patients'personal attributes,self-symptom management,and social support.The data were analyzed using the Colaizzi seven-step method.Patient characteristics are manually extracted and the visualization of user persona was completed by using Word Art word cloud map and user labels.Results Five characteristics were extracted:basic characteristics,psychological adjustment,self-management cognition,self-management behavior and social support.Four typical user persona of self-management in oral can-cer patients during radiotherapy were constructed:optimistic and self-disciplined type,passive laissez-faire type,anxiety contradiction type and passive accepting type.Conclusion There are vast differences in self-symptom management among oral cancer patients during radiotherapy,and user persona can help to build and mine different types of patient persona and group characteristics,which will provide reference for more personalized and precise clinical interventions in the future.
李雨霏;刘雪;曹虎兴;侯黎莉
上海交通大学护理学院,上海 200025上海交通大学护理学院,上海 200025上海交通大学护理学院,上海 200025上海交通大学医学院附属第九人民医院,上海 200011
医药卫生
口腔癌放射治疗自我管理症状管理用户画像质性研究
oral cancerradiotherapyself-managementsymptom managementuser personaqualitative study
《护理学报》 2026 (12)
6-10,5
上海市高水平地方高校创新团队项目(SHSMU-ZD-CX20212802)
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