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山东省普惠型商业医疗保险保障罕见病现状分析OA

Analysis on the Current Situation of Inclusive Commercial Medical Insurance Coverage for Orphan Diseases in Shandong Province

中文摘要英文摘要

目的 分析山东省普惠型商业医疗保险参与罕见病的保障现状,探讨普惠型商业医疗保险对于罕用药的保障水平与趋势.方法 从山东各地市惠民保官方公众号、小程序及医疗保障局网站等渠道收集各地市最新惠民保方案(德州、聊城、枣庄、日照、泰安、菏泽、潍坊7地市为2024年方案,其他9地市为2025年方案)及其特定药品目录,对比分析各方案参保条件和罕见病保障情况,包括覆盖对象、缴费标准、罕见病的保障责任及待遇水平等.结果 人保财险为9 地市惠民保的主承保公司,承保能力最强;其次是国寿保险.16地市的惠民保均面向所属地市基本医保参保人,其中滨州、淄博、临沂、潍坊4 地市还适用于新市民群体;山东16地市的缴费金额最低为10元,最高为149元,淄博市的缴费区间跨度最大.山东16 地市的起付线均在1 万元及以上,报销比例普遍不低于70%,年保额在30 万~50 万元.其中仅有拉罗尼酶浓溶液B注射液(商保数16,覆盖比例100%),是唯一实现全省16 地市全覆盖的罕用药,覆盖最广,对应病种为"黏多糖贮积症".结论 山东省各地市普惠型商业保险在罕见病保障中已发挥补充医疗的作用,加强了对罕用药的供应和减轻医疗负担.但目前罕见病保障尚未全面覆盖,需政府、保险公司等多方协同,进一步扩充罕用药保障的数量与种类,提升保障能力.

Objective To analyze the current status of inclusive commercial medical insurance's protection of orphan diseases in Shandong Province,and to explore the level and trend of inclusive commercial medical insurance's protection of orphan disease drugs.Methods The latest Huiminbao plans and their specific drug lists of various cities in Shandong Province were collected from the official public accounts,mini-programs of Huiminbao in different cities and the websites of medical security bureaus.Among them,Dezhou,Liaocheng,Zaozhuang,Rizhao,Tai'an,Heze and Weifang were the 2024 plans,while the other 9 cities were the 2025 plans.The participation conditions and orphan disease protection situations of each plan were compared and analyzed.This includes coverage objects,contribution standards,protection responsibilities for orphan diseases,and benefit levels,etc.Results Picc Property&Casualty is the lead underwriter of the 9 cities'People's Welfare Insurance,with the strongest underwriting capacity.The second one is China Life Insurance.The"People's Welfare Insurance"in all 16 cities is open to the basic medical insurance participants of their respective cities.Among them,Binzhou,Zibo,Linyi and Weifang cities also apply it to the new urban residents.The minimum payment amount in the 16 cities of Shandong Province is 10 yuan and the maximum is 149 yuan.The payment range in Zibo City is the largest.The deductible in all 16 cities of Shandong Province is 10 000 yuan or more,the reimbursement ratio is generally no less than 70%,and the annual report amount is between 300 000~500 000 yuan.Among them,only Laroni Enzyme concentrated Solution B Injection(commercial insurance number 16,coverage ratio 100%)is the only orphan drug that has achieved full coverage in all 16 cities of the province,with the widest coverage.The corresponding disease type is"mucopolysaccharidosis".Conclusion Universal commercial insurance in various cities of Shandong Province has played a supplementary medical role in orphan disease coverage,strengthening the supply of orphan drugs and reducing the medical burden.However,at present,orphan disease coverage has not been fully covered.It is necessary for the government,insurance companies and other parties to work together to further expand the quantity and types of orphan drug coverage and enhance the coverage capacity.

刘亚宁;宋燕

山东第一医科大学(山东省医学科学院)医疗保障学院,济南 250117山东第一医科大学(山东省医学科学院)医疗保障学院,济南 250117||山东省医药卫生科技信息研究所,济南 250062

医药卫生

普惠型商业保险惠民保罕见病保障责任可持续发展

Inclusive commercial insuranceHuimin insuranceOrphan diseasesInsurance liabilitySustainable development

《中国药物经济学》 2026 (2)

5-9,14,6

山东省药物政策研究重点课题(YZY202202)山东省大学生创新创业计划/山东省社会科学规划研究项目(23CGLJ41)

10.12010/j.issn.1673-5846.2026.02.001

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