首页|期刊导航|贵州中医药大学学报|成人斯蒂尔病(热毒痹)苗医药诊疗方案专家共识

成人斯蒂尔病(热毒痹)苗医药诊疗方案专家共识OA

Expert Consensus on Miao Medicine Diagnosis and Treatment Protocol for Adult-Onset Still's Disease(Heat-Toxin Bi Syndrome)

中文摘要英文摘要

成人斯蒂尔病是一种罕见的、病因不明的自身炎症性疾病,以发热、皮疹、关节肿痛、咽痛、肝脾淋巴结肿大、外周血中性粒细胞增多、血清铁蛋白升高等为主要表现,归属于苗医学"热毒痹"范畴.苗医学对于成人斯蒂尔病(热毒痹)的治疗和管理没有统一规范,经筹备,正式成立了贵州省中医风湿病医疗质量控制中心.在此框架下,省中医药学会风湿病专业委员会组织数十名苗医药学及中医风湿病专家,组建了专家工作组,基于循证医学证据和专家经验编写了该诊疗规范,涵盖了苗医术语、诊断要点、证候分型、治疗方案、护理调摄和疗效评价等内容,重点对成人斯蒂尔病(热毒痹)的苗医药诊疗方案形成共识.本方案旨在填补苗医药治疗成人斯蒂尔病(热毒痹)领域空白,推动民族医药诊治的规范化与标准化,改善患者预后.

Adult-onset Still's disease(AOSD)is a rare,idiopathic autoinflammatory disorder characterized by fever,rash,joint swelling and pain,sore throat,hepatosplenomegaly,lymphadenopathy,increased periph-eral blood neutrophilia,and elevated serum ferritin.It falls within the category of"heat-toxin bi syndrome"in Miao medicine.There is no unified standard for the treatment and management of adult-onset Still's disease(heat-toxin bi syndrome)in Miao medicine.Following preparation,the Guizhou Provincial Quality Control Center for Traditional Chinese Medicine Rheumatology was formally established.Under this framework,the Rheumatology Professional Committee of the Guizhou Provincial Association of Traditional Chinese Medicine or-ganized dozens of experts in Miao medicine and TCM rheumatology to form an expert working group.Based on evidence-based medicine and expert experience,this diagnostic and treatment guideline was developed.Il en-compasses Miao medical terminology,diagnostic criteria,syndrome differentiation,treatment protocols,nursing care,and efficacy evaluation,with a focus on establishing consensus on Miao medicine treatment approaches for adult Still's disease(heat-toxin bi syndrome).This protocol aims to fill the gap in the treatment of Miao medi-cine of adult Still's disease(heat-toxin bi syndrome),promote the standardization of diagnosis in ethnic medi-cine and improve patient prognosis.

任妮娜;马武开;姚血明;唐芳

贵州中医药大学第二附属医院,贵州 贵阳 550003||贵州中医药大学,贵州 贵阳 550025贵州中医药大学第二附属医院,贵州 贵阳 550003贵州中医药大学第二附属医院,贵州 贵阳 550003贵州中医药大学第二附属医院,贵州 贵阳 550003

医药卫生

成人斯蒂尔病热毒痹苗医药诊疗方案专家共识

Adult Still's diseaseheat-toxin bi syndromeMiao medicinediagnosis and treatment proto-colexpert consensus

《贵州中医药大学学报》 2026 (2)

97-102,封3,7

1.贵州省中西医结合防治风湿病工程研究中心项目(黔发改高技[2025]90)2.贵州省中医风湿免疫病临床研究中心项目(黔科合平台人才[2020]2202).

10.16588/j.cnki.issn2096-8426.2026.02.016

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