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孤独症谱系障碍患儿父母创伤后成长体验的质性研究OA

Qualitative study on post-traumatic growth experiences of parents of children with autism spectrum dis-order

中文摘要英文摘要

目的 探讨孤独症谱系障碍患儿父母在照顾患儿过程中的创伤后成长体验,以期为医护人员对孤独症谱系障碍患儿父母进行心理护理提供借鉴.方法 采用目的抽样法,选取2024年1-6月在杭州市儿童医院中医康复科住院接受治疗的12例孤独症谱系障碍患儿的父母作为研究对象,通过半结构化访谈法进行深度访谈,运用Colaizzi七步分析法综合分析访谈资料,提炼访谈主题.结果 共提炼出调整与接纳(从困惑到接纳、内在成长与反思、自我情绪调节)、人际关系的提升(家庭内部关系的提升、外部关系的提升)、个人正性能力的培养(照护能力的提升、重新定义生活的优先次序、健康信息寻求欲望强烈、应对策略多样性)3个主题,9个亚主题.结论 孤独症谱系障碍患儿父母在照顾患儿过程中会经历创伤后成长,产生疾病认知转变及获得内在成长体验,同时表达出对孤独症谱系障碍患儿照护知识及心理应对方面的需求.医护人员需充分发挥引导作用,促进孤独症谱系障碍患儿父母创伤后成长.

Objective To explore the post-traumatic growth experiences of parents of children with autism spectrum dis-order(ASD)during the caregiving process,with the aim of providing insights for healthcare professionals in delivering psy-chological care to them.Methods Using purposive sampling,twelve parents of children with ASD who were hospitalized and received treatment in the traditional Chinese medicine rehabilitation department of Hangzhou Children's Hospital from January to June 2024 were selected as study subjects.In-depth interviews were conducted using a semi-structured interview method and the interview data were analyzed using Colaizzi's seven-step analysis method to extract interview themes.Results A total of three main themes and nine subthemes were extracted,which were adjustment and acceptance(from con-fusion to acceptance,inner growth and reflection,self-emotional regulation),improvement of interpersonal relationships(enhancement of internal family relationships,improvement of external relationships),and cultivation of individual positive abilities(enhancement of caregiving skills,redefinition of life priorities,strong desire for health information seeking,diver-sity of coping strategies).Conclusion Parents of children with ASD experience post-traumatic growth during the caregiving process,leading to changes in their understanding of disease condition and fostering inner growth.At the same time,they express needs for knowledge related to ASD caregiving and psychological coping.Healthcare professionals should play an ac-tive guiding role in promoting post-traumatic growth among parents of children with ASD.

龙艳苗;潘晓琤;舒展慧;桑杲

杭州市儿童医院,浙江 杭州 310014杭州市儿童医院,浙江 杭州 310014杭州市儿童医院,浙江 杭州 310014杭州市儿童医院,浙江 杭州 310014

医药卫生

孤独症谱系障碍患儿父母创伤后成长体验

autism spectrum disorderparents of pediatric patientpost-traumatic growthexperience

《护理与康复》 2026 (1)

1-5,5

杭州市医药卫生科技项目,编号ZD20200135

10.3969/j.issn.1671-9875.2026.01.001

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