Processus pour le développement d’une stratégie d’évaluation de la qualitéde vie en cancer avancépédiatrique Process for Developing a Quality of Life Assessment Strategy in Advanced Pediatric CancerOA
In pediatric advanced cancer,i.e.,when cancer-targeted treatments are not effective,care provided to patients is of palliative nature.It aims at limiting symptoms and optimizing quality of life(QoL).To orient care,it is necessary to know and measure what is really important for young people.Unfortunately,tools are still scarce in this context.The aim of this paper is to describe the development process of a new QoL assessment method,the Advance QoL program.This is specifically designed for the clinical context of pediatric advanced cancer.Three previous studies carried out by our team identified seven important QoL domains for this population.We developed a tool named Advance QoL—parent/caregiver version.A current study aims to develop self-reported versions of the Advance QoL for children(8-12 years)and adolescents(13-18 years)with advanced cancer.In the very near future,the Advance QoL tool will be available in three versions(parents/caregivers,children,and adolescents)ready to be tested in validation studies.Regular assessment of the QoL of young people with cancer is a central process in defining targets for care and should be carried out throughout the trajectory,including when cancer is at an advanced stage,i.e.,when no standard treatment options are available.
Lye-Ann Robichaud;Marianne Olivier-D’Avignon;Julie Felipe;Hermann Ferdinand Thomas Ehrenfeld;Marc-Antoine Marquis;Bruno Michon;Émélie Rondeau;Mathias Tyo-Gomez;Michel Duval;Serge Sultan
Département de Psychologie,Universitéde Montréal,Montréal,H3C 3J7,Canada Centre de Recherche,Centre Hospitalier Universitaire(CHU)Sainte-Justine,Montréal,H3T 1C5,Canada Centre de Psycho-Oncologie(CPO),CHU Sainte-Justine,Montréal,H3T 1C5,CanadaÉcole de Travail Social,UniversitéLaval,Québec,G1V 0A6,CanadaDépartement de Psychologie,Universitéde Montréal,Montréal,H3C 3J7,CanadaDépartement de Psychologie,Universitéde Montréal,Montréal,H3C 3J7,Canada Centre de Recherche,Centre Hospitalier Universitaire(CHU)Sainte-Justine,Montréal,H3T 1C5,Canada Centre de Psycho-Oncologie(CPO),CHU Sainte-Justine,Montréal,H3T 1C5,CanadaDépartement de Pédiatrie,Universitéde Montréal,Montréal,H3T 1C5,Canada Département de Pédiatrie Générale,CHU Sainte-Justine,Montréal,H3T 1C5,CanadaCentre Mère-enfant Soleil,CHU de Québec-UniversitéLaval,Québec,G1V 4G2,Canada CHU de Québec-UniversitéLaval,Québec,G1V 4G2,CanadaCentre de Recherche,Centre Hospitalier Universitaire(CHU)Sainte-Justine,Montréal,H3T 1C5,Canada Centre de Psycho-Oncologie(CPO),CHU Sainte-Justine,Montréal,H3T 1C5,CanadaPatient Partenaire,CHU Sainte-Justine,Montréal,H3T 1C5,CanadaDépartement de Pédiatrie,Universitéde Montréal,Montréal,H3T 1C5,Canada Département d’Hémato-OncologIe,CHU Sainte-Justine,Montréal,H3T 1C5,CanadaDépartement de Psychologie,Universitéde Montréal,Montréal,H3C 3J7,Canada Centre de Recherche,Centre Hospitalier Universitaire(CHU)Sainte-Justine,Montréal,H3T 1C5,Canada Centre de Psycho-Oncologie(CPO),CHU Sainte-Justine,Montréal,H3T 1C5,Canada Département de Pédiatrie,Universitéde Montréal,Montréal,H3T 1C5,Canada Département d’Hémato-OncologIe,CHU Sainte-Justine,Montréal,H3T 1C5,Canada
医药卫生
Pediatric canceradvanced cancerpalliative carequality of lifemeasures
《Psycho-Oncologie》 2024 (2)
P.127-135,9
Le programme Advance QoL aétéfinancépar la Fondation du CHU Sainte-Justine,par le Réseau québécois de recherche en soins palliatifs et de fin de vie (RQSPAL,Projet pilote 2018)par la Fondation Coast-to-Coast Canada et par les Instituts de recherche en santédu Canada (IRSC).
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